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Caregiving: The Politics, Ethics, and Realities of Long-Term Care

On Thursday, June 23, 2016 Health & Medicine held the first event in a two part series--part of our Chicago Forum for Justice in Health Policy--on current realities and future directions for paid and unpaid caregivers for older adults and people with disabilities. Almost 100 professionals in the healthcare and social services, including providers, activists, and policy advocates joined us for the first event in this series.

Forum Speakers and Presentations:

  • Darby Anderson, Executive Vice President/Chief Development Officer, Addus HomeCare, Inc. - View the presentation
  • Tamar Heller, Professor and Head of UIC Department of Disability and Human Development - View the presentation
  • Beverly Rogers, Family Caregiver, New Faith Baptist Church
  • Joe McBeth, Executive Director, National Alliance for Direct Support Professionals
  • Tony Paulauski, Executive Director, The Arc of Illinois
  • Bob Pearson, Self-Advocate
  • Elaine Jurkowski, Professor, School of Social Work-SIUC, Geriatrics Workforce Enhancement Program - View the presentation
Forum Resources:

Goals of the two-part Caregiving series:
  • To raise awareness about the hidden injustices within the Long-Term Care system that relies on mostly unpaid work by family caregivers and the woefully inadequate and insufficient workforce of paid caregivers in underfunded State Medicaid programs.
  • The lack of a robust workforce in the face of the growing demand for LTSS and community-based services obstructs the vision of a relationship-driven system that would serve justice and the public good.
  • To explore and identify the common challenges and potential solutions among aging and disability stakeholders.
  • To challenge assumptions about aging, disabilities, and caregiving.

About The Chicago Forum for Justice in Health Policy:
Each policy forum in The Chicago Forum for Justice in Health Policy series will focus on health reform efforts both in Illinois and in the Chicago area, including discussions of best practices from around the country.